Sinopse

Welcome to Help4HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help4HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through a generous communications grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with you own physician for advice about any medical recommendation.

Episódios

  • Telehealth

    Telehealth

    21/11/2020 Duração: 13min

    Telehealth

  • BJ Viau on Genetic Testing

    BJ Viau on Genetic Testing

    11/11/2020 Duração: 33min

    BJ Viau (view) has been a Huntington's Disease advocate for the past 20 years in multiple roles.  After his mom was diagnosed in the mid-90s his family hosted a  basketball fundraising event for 15 years that raised funds supporting the Huntington's Disease Society America.  His fundraising led him to meet many other young people impacted by HD which led to being a co-founder and 10-year board chairman of the Huntington's Disease Youth Organization, an international non-profit supporting kids, teenagers and young adults impacted by HD.  Professionally, BJ has spent 10+ years in the pharmaceutical space.  Many of those years were at Lundbeck, working with Tetrabenzine, the first FDA approved medicine for chorea associated with HD.  BJ has an MBA from the Kellogg school of management and a passion to help others in the HD community, especially those thinking about or going through the genetic testing and counseling process. 

  • The Holidays and COVID-19

    The Holidays and COVID-19

    04/11/2020 Duração: 14min

    We talk with Lauren Yaeger about how COVID-19 is impacting the holidays

  • The Gut and HD

    The Gut and HD

    28/10/2020 Duração: 26min

    Dr. Julie Stout and Cory Wasser join us from Australia.

  • Home Health Care

    Home Health Care

    21/10/2020 Duração: 31min

    Katrina Hamel and Lauren talk about home health care

  • Lets Talk about SIGNAL

    Let's Talk about SIGNAL

    14/10/2020 Duração: 23min

    Let's Talk about SIGNAL with Christie and Chad.

  • Campaign for My Brain

    Campaign for My Brain

    07/10/2020 Duração: 18min

    For more info, visit http://campaignformybrain.co.uk You can purchase "Harry Needs a Hug" here: https://www.amazon.com/Harry-needs-hug-children-Huntingtons/dp/B08FNJK2BN  

  • Help 4 HD Symposium

    Help 4 HD Symposium

    30/09/2020 Duração: 19min

    Help 4 HD Symposium

  • Huntingtons Disease Alters Human Development in the Fetal Stage

    Huntington's Disease Alters Human Development in the Fetal Stage

    23/09/2020 Duração: 22min

    Huntington's Disease Alters Human Development in the Fetal Stage

  • Durable Medical Equipment and HD

    Durable Medical Equipment and HD

    17/09/2020 Duração: 01h00s

    To see the Facebook Live and see the resources I posted: https://www.facebook.com/585948945/videos/10157636988738946 For an amazing resource dealing with assistance for durable medical equipment: https://www.payingforseniorcare.com/durable-medical-equipment/state-assistive-tech  

  • JHD Tips and Tricks with Michele

    JHD Tips and Tricks with Michele

    09/09/2020 Duração: 25min

    JHD Tips and Tricks with Michelle

  • Neubase Therapeutics

    Neubase Therapeutics

    02/09/2020 Duração: 22min

    Dr. Stephan is an industry veteran who is considered one of the fathers of the field of precision medicine, having trained with the leadership of the Human Genome Project at the NIH and then going on to lead discovery research at the Translational Genomics Research Institute and serve as professor and chairman of the Department of Human Genetics at the University of Pittsburgh. Stephan has identified the molecular basis of dozens of genetic diseases and published extensively in journals such as Science, the New England Journal of Medicine, Nature Genetics, PNAS and Cell. In parallel, Dr. Stephan has founded or co-founded 14 biotechnology companies and has advised an additional 12 companies. These companies are backed by top-tier investors such as Sequoia Capital, KPCB, Thiel Capital, and Khosla Ventures as well as corporate partners such as Life Technologies, Pfizer, and Mayo Clinic. Dr. Stephan received his Ph.D. from the University of Pittsburgh and his B.S. from Carnegie Mellon University.

  • Inadequate Care in HD

    Inadequate Care in HD

    26/08/2020 Duração: 14min

    "I am a doctor, pursuing clinical care and research in HD for the past 5 years. I met approximately 150 HD patients and about 50 families are in regular consultation with me. This sensitized me to the misery created by HD in various contexts such as social, economic and cultural besides the obvious biological deterioration of the individual. I am committed to the cause of empowering HD affected individuals and families through clinical care, HD centric research and community activities through HDSI. I strongly believe in team work and have been connecting all the HD related people from India and abroad. I am currently serving as the vice chairman of Huntington Disease Society of India. Dr Nikhil Ratna MBBS, PhD (thesis submitted) Vice-chairman, HDSI Associate member, EHDN Member, The International Parkinson and Movement Disorder Society (MDS) "  

  • Trey Gray

    Trey Gray

    18/08/2020 Duração: 30min

    Please visit https://www.thetreygrayfoundation.org/about-trey for more information!

  • Anticipatory Grief

    Anticipatory Grief

    12/08/2020 Duração: 31min

    Anticipatory Grief with Lauren and Sharon

  • Anne-Elizabeth Reair

    Anne-Elizabeth Reair

    05/08/2020 Duração: 19min

    Anne-Elizabeth shares her HD story

  • Azevan Needs Our Help

    Azevan Needs Our Help

    29/07/2020 Duração: 19min

    HD CAREGIVERS, WE NEED YOUR HELP! To prepare for a clinical trial of a drug that may reduce the disruptive aggressive behavior that some persons or patients with HD suffer from, we would like to interview about 25 caregivers who are parents, spouses, or adult children of patients who have aggressive outbursts. We are specifically interested in trying to build a list of words that can be used to describe these physically aggressive, acting out, or other threatening behaviors. The research is sponsored by Azevan Pharmaceuticals, Inc. The interviews will be conducted by Erin Koppel, who works at the Huntington's Disease Society of America Center of Excellence at Georgetown University. We will provide a special cell phone number that guarantees the privacy of the connection. The calls will be voice recorded and transcribed so that they can be reviewed more easily. The information that you provide will be stored in password-protected files at Georgetown University. You must be fluent in English an

  • Triplet Therapeutics, Part 2

    Triplet Therapeutics, Part 2

    22/07/2020 Duração: 29min

    Irina has worked in drug development for over 18 years, with a focus on translational medicine and early development in neuroscience, but also ophthalmology and immunology. She has gained experience with development of small molecules, biologics as well as nucleic acid therapeutics, in a number of global pharma and biotech organizations in the US and Europe. Before joining Triplet Therapeutics, Inc., she was VP of Translational Medicine and Development at Wave Life Sciences in Cambridge, MA, developing stereopure nucleic acid therapeutics for rare genetic diseases.   Irina has an MD from the Technical University, Munich (Germany), and a PhD in neurophysiology from the University of Edinburgh, UK. She trained in psychiatry and neurology at the Max Planck Institute of Psychiatry (in Munich), and is board certified in Germany.   She obtained her venia legendi at the Charite, Berlin University in 2004; she is a reviewer for the German Ministry of Research and member of two supervisory boards in Germany: 4SC A

  • Triplet Therapeutics, Part 1

    Triplet Therapeutics, Part 1

    15/07/2020 Duração: 24min

    Nessan Bermingham is founder and CEO of Triplet Therapeutics, Inc. He is a serial biotech entrepreneur and investor who has founded several companies including Triplet, Korro Bio and Intellia Therapeutics, “one of the top 10 biotech start-ups in 2014” and a “Fierce 15 biotech company,” taking the company from concept to IPO and large partnering deals with approximately 200 employees. He has nearly two decades of experience in Life Sciences startups and investments, including small molecules, biologics, medical devices, and diagnostics through venture, public, and secondary markets. As a venture partner at Atlas Venture and managing partner at Omega Funds, he successfully invested in and managed multiple investments across the United States and Europe. Currently he is also a venture partner at Atlas Venture and is Chair of the Board of Directors of F-star and Akrevia Therapeutics. He served as Intellia’s President and CEO from inception until December 2017. Previously he was an independent advisory board membe

  • Kirsten and COVID19

    Kirsten and COVID19

    08/07/2020 Duração: 15min

    Kirsten and COVID19

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